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He said as many as 28.5 out of the 10,000 population of children from the age of 0-18 years, or 25,000 to 30,000 children in the country suffer from chronic or terminal illnesses that required specific palliative care. This specific palliative care includes full-time palliative care, coordination and comprehensive management among multidisciplinary treating groups, as well as providing support to family members to cope with the grief and bereavement process, he said when launching the Handbook of Children s Palliative Care Malaysia virtually on Tuesday (April 6).
Dr Adham said the ministry faced a big challenge to further strengthen paediatric palliative medicine services, as the planning of these services would be continued under the 12th Malaysia Plan by expanding regionally to Penang and Sabah.
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On February 3 2017, palliative care specialist Dr Sue Walter was driving in Joburg when she got a call to say she had been diagnosed with a bone cancer known as multiple myeloma, typically incurable. “I remember the day. It was the day before my birthday,” says the 47-year-old mother.
“Obviously it was a shock, and it really made me want to change the law,” says Walter, who was already fighting for the right to die with dignity before that day.
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